Jason and I had a meeting with the school staff who oversee his development, the psychologist who routinely meets with us, & two new people who specialize in supporting schools who have students with autism. In the meeting, the head teacher (the British equivalent of a principle) pointed out several times that being the parent of three active children, especially one that has special needs, is a daunting job and that I often appear "worn out." Since Graham's tendency to run away as we walk to & from school was also a big part of the discussion, I have spent the last 24 hours feeling like the imaginary name tag on my chest is the size of a billboard.
As we sat in that meeting, the thought came, "This is your job." That thought makes me so sad. It makes me feel like I'm the depressed, bored, drone who will be stuck in the same dead-end situation until the grave -- and the world knows it.
I don't know how to turn it around. I can't snap my fingers & have Graham's condition change, I can't make Cami & Rose be perfect, self-caring children, & I can't return to the bright times in my college life when it felt like I could conquer the world. I just don't know how to give my family everything they need. And I don't know if my job will ever allow two weeks vacation.